Clinical demonstration to appy the FAIR principles and facilitate the sharing and reuse of health research data

FAIR4Health is a project funded by the Science with and for Society (SwafS-04-2018) call of Horizonte 2020 of the European Commission. It is carried out by 17 partners from 11 different countries and lasts 36 monthsactive from 1 December 2018 until 30 November 2021.

The project is being led and coordinated by the Technological Innovation Group, with the collaboration of the Internal Medicine Department, both at the Virgen del Rocío University Hospital in Seville (Spain). 

Currently, the FAIR4Health project is in month 32 of the project, validating two specific use cases that have included the application of FAIR principles to make health research data findable, accessible, interoperable and reusable, from a responsible perspective.

The purpose of the demonstration currently in progress is to demonstrate and obtain a strong impact on health research and on healthcare, through the use of the tools developed for the application of FAIR principles and subsequent privacy-preserving federated analysis (Privacy Preserving Distributed Data Mining) of health research data for the validation of the hypotheses proposed in the defined use cases.

For this demonstration and clinical validation, the following use cases have been defined, whose pilots are currently ongoing and whose results will be analysed next September:

    • Identification of multimorbidity patterns and correlation of polypharmacy in the risk of mortality in complex chronic patients. 
    • Early prediction service of the risk of readmission in 30 days in patients with Chronic obstructive pulmonary disease (COPD).

The Human-Machine Interfaces in Clinical Settings Group of the University of Geneva has a relevant participation in both use cases. Researchers are investigating these patterns using the developed solution. Moreover, in the second use case, the Internal Medicine Department of the Virgen del Rocío University Hospital in Seville (Spain), in cooperation with the Institute of Pulmonary Diseases of Vojvodine (Serbia), are recruiting patients to use the readmission risk prediction service. 

Besides, as part of the coordination of the project, the appropriate and effective collaboration and communication between the different partners of the FAIR4Health consortium is promoted, led by the Andalusian Health Service (Spain), and made up of the following partners: Instituto Aragonés de Ciencias de la Salud (Spain), Universidad Carlos III de Madrid (Spain), Atos Spain SA (Spain), University for Health Sciences, Medical Informatics and Technology (Austria), HL7 Foundation (Belgium), Institut für Medizinische InformatikStatistik und Epidemiologie - Universität Leipzig KöR (Germany), Academic Medical Center of University of Amsterdam (Netherlands), University of Geneva (Switzerland), Peter L. Reichertz Institute for Medical Informatics, University of Braunschweig (Germany), Università Cattolica del Sacro Cuore (Italy), European Federation of Medical Informatics (Switzerland), Digital Curation Centre from University of Edinburgh (United Kingdom), Garrigues (Spain), Software Research and Development Consultancy (Turkey), University of Porto (Portugal), and the Institute of Pulmonary Diseases of Vojvodine (Serbia).

The FAIR4Health consortium has a website and social media profiles @Fair4Health where anyone can consult all the information on the project. 

FAIR4Health is funded by the European Union's Horizon 2020 research and innovation programme under Grant Agreement number 824666.