Le partage des données de recherche comporte deux aspects : la mise à disposition des données et la réutilisation des données. La mise à disposition de vos données pour d’autres chercheurs et chercheuses augmente la visibilité de vos activités de recherche, et peut conduire à l’éclosion de nouvelles collaborations. La réutilisation de données permet l’économie des ressources qui auraient été nécessaires à leur production.
Le partage des données de recherche nécessite, entre autres, la FAIRification des données (par exemple : utilisation d’ontologies et de standards reconnus, utilisation d’identifiants pérennes (PID)), une documentation détaillée et des métadonnées enrichies.
La FAIRification des données requiert, entre autres, l’utilisation généralisée de standards reconnus. L’inventaire des standards disciplinaires du tableau ci-dessous est classé par discipline et ne contient que des standards reconnus et largement utilisés.
Vous pouvez retrouver de plus amples informations dans le fichier standards disciplinaires @FacMed disponible au téléchargement. Dans ce fichier, une description du standard est donnée ainsi que sa date de création, et un lien fairsharing.org est fourni pour chaque entrée.
| Discipline | Standard Full Name | Abbreviation | Keywords |
|---|---|---|---|
| Biochemistry | BioAssay Ontology | BAO | high-throughput screening ; assay description ; chemical biology |
| Biochemistry | CAS Registry Number | CAS RN | chemical identification ; compound tracking ; registry indexing |
| Biochemistry | Core Information for Metabolomics Reporting | CIMR | metabolomics reporting ; experimental metadata ; reproducibility |
| Biochemistry | Enzyme Commission Number | EC Number | enzyme classification ; catalytic activity ; reaction typing |
| Biochemistry | IUPAC International Chemical Identifier | InChI | chemical structure encoding ; machine readability ; compound identification |
| Biochemistry | Investigation Study Assay Tabular | ISA-Tab | experimental metadata ; study structure ; multi-omics |
| Biochemistry | Minimal Information Required In the Annotation of Models | MIRIAM | model annotation ; computational biology ; curation guidelines |
| Biochemistry | RxNORM | RxNORM | clinical drugs ; terminology mapping ; pharmacy interoperability |
| Biochemistry | Simplified Molecular Input Line Entry Specification Format | SMILES | chemical notation ; structure representation ; computational chemistry |
| Biochemistry | Standards for Reporting Enzymology Data Guidelines | STRENDA | enzyme kinetics ; assay reporting ; data reproducibility |
| Bioinformatic | CellML | CellML | mathematical models ; model exchange ; systems biology |
| Clinic | Apollo-SV | Apollo-SV | epidemic modeling ; public health simulation ; semantic interoperability |
| Clinic | The CXI File Format for Coherent X-ray Imaging | CXI | x-ray imaging ; experimental data storage ; imaging analysis |
| Clinic | Fast Healthcare Interoperability Resources | FHIR | healthcare interoperability ; clinical data exchange ; REST APIs |
| Clinic | International Classification of Diseases Version 11 | ICD 11 | disease classification ; clinical coding ; epidemiology |
| Clinic | Health informatics - Electronic health record communication | ISO 13606-5:2019 | EHR communication ; semantic interoperability ; health records |
| Clinic | Logical Observation Identifier Names and Codes | LOINC | laboratory tests ; clinical observations ; measurement coding |
| Clinic | Medical Dictionary for Regulatory Activities Terminology | MedDRA | regulatory reporting ; adverse events ; drug safety |
| Clinic | Minimum Information About BIobank data Sharing | MIABIS | biobank metadata ; sample sharing ; resource discovery |
| Clinic | The Observational Medical Outcomes Partnership Common Data Model | OMOP CDM | observational data ; data harmonization ; comparative research |
| Clinic | openEHR Health Record Specification | openEHR | EHR modeling ; clinical semantics ; interoperability |
| Clinic | Systematized Nomenclature of Medicine-Clinical Terms | SNOMED CT | clinical terminology ; semantic consistency ; EHR coding |
| Clinic | Swiss Personalized Health Network RDF Schema | SPHN RDF Schema | semantic web ; Swiss health data ; RDF integration |
| Clinic | STAndards for the Reporting of Diagnostic accuracy | STARD | diagnostic accuracy ; study reporting ; bias assessment |
| Clinic | Symptom Ontology | SYMP | patient-reported symptoms ; phenotyping ; clinical annotation |
| Clinic | Transparent Reporting of a multivariable prediction model for Individual Prognosis Or Diagnosis | TRIPOD+AI | prediction models ; transparent reporting ; clinical AI |
| Clinic | The UMLS Semantic Network | UMLS | concept categorization ; terminology integration ; semantic relations |
| Clinic | Anatomical Therapeutic Chemical Classification | ATC | drug classification ; therapeutic grouping ; pharmacology |
| Clinic | Global Alliance for Genomics and Health Passports Specification | GA4GH Passports | data access control ; genomic permissions ; researcher identity |
| Clinic | BioPortal | BioPortal | ontology repository ; terminology browsing ; semantic annotation |
| General | Contributor Roles Taxonomy | CRediT | author contributions ; research roles ; scholarly credit |
| General | DataCite Metadata Schema | DataCite Schema | dataset citation ; persistent identifiers ; research metadata |
| General | DataCite Ontology | DataCite | RDF metadata ; dataset description ; linked data |
| General | Dublin Core Metadata Element Set | DCES | resource description ; metadata interoperability ; cataloguing |
| General | Darwin Core | DwC | biodiversity data ; specimen records ; taxonomy sharing |
| General | The FAIR Principles | FAIR | data reuse ; machine readability ; open science |
| General | Research Object Crate | RO-Crate | research packaging ; metadata bundling ; provenance |
| General | Resource Description Framework Schema | RDFS | schema definition ; semantic modeling ; linked data |
| General | Research Resource Identifier | RRID | resource citation ; method transparency ; reproducibility |
| Genetics | Genomic Epidemiology Ontology | GenEpiO | infectious disease surveillance ; genomic epidemiology ; outbreak monitoring |
| Genetics | Gene Ontology | GO | gene function ; biological processes ; functional annotation |
| Genetics | HGNC Gene Symbols, Gene Names and IDs | HGNC | gene naming ; identifier standardization ; genomic annotation |
| Genetics | Minimum Information About a Microarray Experiment | MIAME | microarray metadata ; experiment reproducibility ; functional genomics |
| Genetics | Minimal Information about a high throughput SEQuencing Experiment | MINSEQE | sequencing experiments ; NGS metadata ; data interpretation |
| Genetics | Minimum Information for Reporting Next Generation Sequencing Genotyping | MIRING | HLA genotyping ; NGS reporting ; immunogenetics |
| Imaging | Digital Imaging and COmmunications in Medicine | DICOM | medical imaging ; image exchange ; clinical diagnostics |
| Imaging | Recommended Metadata for Biological Images | REMBI | bioimaging metadata ; image reuse ; experimental context |
| Neurosciences | Brain Imaging Data Structure | BIDS | neuroimaging organization ; data standardization ; reproducible analysis |
| Neurosciences | Emotion Ontology | MFOEM | affective states ; emotion annotation ; behavioral research |
| Neurosciences | Mental Functioning Ontology | MF | cognitive processes ; mental traits ; neuroscience annotation |
| Neurosciences | MFO Mental Disease Ontology | MFOMD | mental disorders ; disease classification ; psychiatric research |
| Neurosciences | Neuroimaging Data Model | NIDM | neuroimaging provenance ; workflow description ; data sharing |
| Neurosciences | NIDM-Results | NIDM-Results | statistical maps ; neuroimaging results ; result sharing |
| Ontologies | The Data Use Ontology | DUO | usage restrictions ; access conditions ; data governance |
| Ontologies | OBO Flat File Format Syntax and Semantics | OBO Format | ontology development ; controlled vocabularies ; semantic standards |
| Physiology | Mammalian Phenotype Ontology | MP | phenotypic traits ; model organisms ; genotype-phenotype |
| Proteomics | Uniprot Core Ontology | core | protein annotation ; RDF representation ; knowledge integration |
| Proteomics | Minimum Information About a Proteomics Experiment | MIAPE | proteomics reporting ; experimental metadata ; data reproducibility |
| Proteomics | macromolecular Crystallographic Information File | PDBx/mmCIF | structural biology ; macromolecular structures ; crystallography data |
| Proteomics | Proteomics Standards Initiative Extended Fasta Format | PEFF | sequence databases ; protein variants ; annotation exchange |
| Proteomics | HUPO-PSI Universal Spectrum Identifier | USI | mass spectra identification ; proteomics evidence ; data traceability |
Conception : Valérie Barbié, Philippe Bijlenga, Johann Bosson, Hugues Cazeaux, Sébastien Courvoisier, Douglas Teodoro
Mise à jour : 24.04.2026
